Category: Articles

  • When “Anticipatory” Becomes the Problem: Epilepsy, Episodic Disability, and PCA Assessments

    For people with epilepsy and other episodic disabilities, one of the hardest problems is not always proving that the disability exists. Sometimes the harder problem is proving what assistance is actually needed when the disability becomes active. Federal disability regulations expressly recognize this problem. An episodic impairment can qualify as a disability based on how…

  • Endurance Is Not Independence: What PCA Cuts Miss About Invisible Disability

    By the FHCA How Massachusetts PCA policy, Federal Medicaid pressure, and invisible disabilities collide when systems confuse survival with functional ability. There is a quiet crisis happening around personal care assistance. For many people, PCA services are not luxury services. They are not comfort services. They are not simply “extra help.” For people with disabilities,…

  • By Br. Richard Mills Public trust is often formed during moments of visibility. In times of crisis, communities naturally look toward leadership for stability, direction, and reassurance. Public officials, housing authorities, nonprofit organizations, and community leaders all play visible roles in shaping whether people believe institutions are functioning fairly and responsibly. But long-term trust depends…